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2Brothers with Hemophilia · 1M ago

7 Tips for Holiday Travel Success

When you have a bleeding disorder and you are traveling, there are many things to remember. Forgetting factor or Huber needles can leave you in a bind, because these are not items that are e...
2Brothers with Hemophilia · 1M ago

Mama Bears and Warriors: Tears and Joy

Buckets. Buckets and buckets of tears. That’s the only way I can describe the tears I have shed over the years because of living with hemophilia in my home. Both of my sons have had their ow...
2Brothers with Hemophilia · 2M ago

Something New: Welcoming a New Product to the Family

The hemophilia landscape is much different today from 21 years ago, when my first son was born. There were not many choices in products and they all seemed to do the same thing — help with c...
2Brothers with Hemophilia · 4M ago

How Our Family Regained Control

There have been seasons when hemophilia became the center of my family’s universe. A bleed would start and before it healed completely, it re-bled, or a new one began. Visits to the clinic f...
2Brothers with Hemophilia · 6M ago

A New Opportunity

I started blogging in 2006 out of loneliness. My family moved from Houston to a small town in New Mexico and one night I was completely overwhelmed by the fact that we actually moved! It was...
2Brothers with Hemophilia · 8M ago

Hindsight

Whenever I have the chance to say my brother's name, either aloud or on paper, I say it, "Ronaldo Julian Campos was born on May 23, 1962.  He lived for five days and suffered a bleed in his ...
2Brothers with Hemophilia · 9M ago

Transition complete

Today was day 10, the final day of transitioning my mighty warrior, Caeleb, from Advate to Alphanate.  We started with 250 units of Alphanate and increased each day as we lowered the Advate....
2Brothers with Hemophilia · 9M ago

No fear

I was in the clinic today with my mighty warrior.  He is starting to transition from a recombinant Factor VIII to a plasma derivedFactor VIII.  He has been doing well for a couple of years w...
2Brothers with Hemophilia · 9M ago

Unheard of

Starting the journey down to the cavernsCatching our breathSpring Break 2017 is done.  We traveled to the south of New Mexico to take in Roswell and Carlsbad Caverns, swung through El Paso a...
2Brothers with Hemophilia · 10M ago

Numbers...ugh

When you live with an inhibitor you often wonder what life would be like if you "only had hemophilia."  In our case, Caeleb, who is 11, has lived for 10 years with an inhibitor.  Shouldn't i...