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2Brothers with Hemophilia · 1M ago

How Our Family Regained Control

There have been seasons when hemophilia became the center of my family’s universe. A bleed would start and before it healed completely, it re-bled, or a new one began. Visits to the clinic f...
2Brothers with Hemophilia · 3M ago

A New Opportunity

I started blogging in 2006 out of loneliness. My family moved from Houston to a small town in New Mexico and one night I was completely overwhelmed by the fact that we actually moved! It was...
2Brothers with Hemophilia · 5M ago

Hindsight

Whenever I have the chance to say my brother's name, either aloud or on paper, I say it, "Ronaldo Julian Campos was born on May 23, 1962.  He lived for five days and suffered a bleed in his ...
2Brothers with Hemophilia · 6M ago

Transition complete

Today was day 10, the final day of transitioning my mighty warrior, Caeleb, from Advate to Alphanate.  We started with 250 units of Alphanate and increased each day as we lowered the Advate....
2Brothers with Hemophilia · 6M ago

No fear

I was in the clinic today with my mighty warrior.  He is starting to transition from a recombinant Factor VIII to a plasma derivedFactor VIII.  He has been doing well for a couple of years w...
2Brothers with Hemophilia · 6M ago

Unheard of

Starting the journey down to the cavernsCatching our breathSpring Break 2017 is done.  We traveled to the south of New Mexico to take in Roswell and Carlsbad Caverns, swung through El Paso a...
2Brothers with Hemophilia · 7M ago

Numbers...ugh

When you live with an inhibitor you often wonder what life would be like if you "only had hemophilia."  In our case, Caeleb, who is 11, has lived for 10 years with an inhibitor.  Shouldn't i...
2Brothers with Hemophilia · 9M ago

Eleven years

My mighty warrior, Caeleb turns 11 years old today.  I lived for 37 years without him…how in the world is that possible?  I have always said that I felt like my life began on June 23, 1996 w...
2Brothers with Hemophilia · 9M ago

Smells and Sounds - Guest posting at HFA

The senses of sound and smell are very powerful. Sometimes a smell can spark a memory of a wonderful meal simmering on a stove or the smell of the air from a perfect breeze on a spring day c...
2Brothers with Hemophilia · 11M ago

On this day...

I love when I look at Facebook and the "On This Day…." reminder comes up.  A familiar photo of a special time with family and friends, a post about the events of a fantastic day…but when Oct...