A Day Like No Other

Hey everyone – I just wanted to tell you about a new activity I’ll be doing this April. The Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post a day for all 30 days. I hope you’ll join me in writing every day about health. It’s goin...

So… it is the day after Purple Day 2012.  Yesterday I wore my Anita Kauffman T-Shirt and my purple Buff headwear… I was reflecting on Adam’s week last week in the video EEG room… trapped… with only marginal responses.  The doctor suggested it would be a good idea to tak...

So… it has been an amazingly long and awful week.  I feel like I got hit by a truck, physically, from the stress.  I feel like I’ve been beaten up by a rabid baboon with a baseball bad in one hand and a taser in the other hand.  I’m ready for the baboon to quit. [...]

It isn’t like I thought life would get boring (or even normal or anything) but I could have lived with the seeing out of 2011 being quieter. Tuesday we had Amandya’s neurologist appointment.  Dr Reardon assured here that he would be good with her seeing him until she is into her early 20...

Well, I’ve now decided that it is time to get off my butt and get going on wide scale book writing.  I’m working on an RA book (rheumatoid arthritis) and have officially started “A Day Like No Other” about getting diagnosed with Epilepsy. I would love to have people’s s...

I was driving into work yesterday and I passed several places where police cars were pulled over at broken down cars, accidents and/or speeders (not likely given it was rush hour… but maybe) and I noticed the light bars and their patterns and activities.  It dawned on me that (duh) we don̵...

Fact: Although many people do not have a physical experience of an aura, it is still a distinct part of a seizure. This was a fact from October 30th… I wonder… Amandya says she doesn’t have auras that she can remember… but she remembers so little surrounding her seizures.  I ...

So… I’ve managed to get my head back above water… I’ve slept a couple times… and I am getting a little more clear headed.  Time to pull together more of the story. It took way longer than I would have liked to get Amandya into surgery.  In my head I know that they can o...

Here we are again… On the eve of Epilepsy Awareness Month. Here come the facts and information!!!