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Getting Closer to Myself · 4W ago

When You Are “Protected” From Your Protected Health Information (PHI)

I recently had to obtain my medical records from the rheumatologist at Mount Sinai Hospital that I saw while I lived in New York, and the records for my two most recent appointments with my ...
Getting Closer to Myself · 1M ago

Dear Dad, It Has Been Three Years...

Dear Dad, I can’t believe that it has been three years since you’ve been gone.  It’s so hard to imagine that time has gone by without you.  And yet, it has.  I remember, in the beginning,...
Getting Closer to Myself · 1M ago

Book Review: “It’s Not Yet Dark”*

“I was once invisible.  I moved among you, invisible in my disguise. Now I am difference made manifest” (p. 2). It’s not often that you start a book and finish it the same weekend.  It’s ...
Getting Closer to Myself · 2M ago

I Do Have Lupus And RA After All…

16 days after my appointment took place, the new rheumatologist that I saw called me with my test results.  Keep in mind that these results were available on the patient portal, which I was ...
Getting Closer to Myself · 3M ago

10 Things Phlebotomists Should Never Say

When I first got sick, I was totally scared of needles.  After getting 27 tubes of blood drawn – yes, I’m not exaggerating, I counted before I passed out (just kidding, I didn’t pass out, sh...
Getting Closer to Myself · 3M ago

The Storm After Years Of Calm

What’s one of your worst fears? One of my worst fears, for as long as I have been chronically ill, is seeing a new doctor who disagrees with my diagnoses. That’s exactly what happened ...
Getting Closer to Myself · 4M ago

I Lead A Good Life And I’m Not A Burning Down House (Or Shit People Say To People With Pre-Existing Conditions)

First, Senator Pat Toomey (R-Penn) compared people with pre-existing conditions to burning down houses, stating that it’s pointless to insure a house that’s already on fire, and so the same ...
Getting Closer to Myself · 4M ago

A Thank You Note To My Rheumatologist

At the end of February, I went to see my rheumatologist in Ann Arbor.  When I moved back from New York, it was an easy decision to start seeing him again.  I couldn’t see him right away sinc...
Getting Closer to Myself · 5M ago

It’s Personal And It’s Political

I’ve been absent from my blog for a while now.  It’s not that I don’t have anything to write about.  I do.  I had surgery in November that I haven’t even talked about.  There are other thing...
Getting Closer to Myself · 6M ago

Product Review: Spoonie Essentials Box

** I have been given this product as part of a product review through the Chronic Illness Bloggers network.  Although the product was a gift, all opinions in this review remain my own an...