Take Care
The following article appeared in today's The Daily Telegraph.Maybe this story is about us. Or maybe someone else. Perhaps its a compliation of cases attended. Either way, it is my story. Dont let it be yours.By Dr Steve Walker,The Daily Telegraph,November 26, 2009 A river of tears for children lost IT WAS another hot afternoon in Sydney. The sort of weather that we have come to associate with children drowning. They don't understand that pools are dangerous - only that they are fun and offer respite from the heat. We have been to so many drowned children the last

Sleep!
Josh had a sleep study done Wednesday evening of the 11th... we went up to the room for him to be "wired up" at 4.30, and it took awhile to place all the monitors in the right place. This is a pic with only about half done.The study was arranged months

Bugs
His chest xrays came back no worse than previous ones from the day before., but we now know that Jojo has a couple of different bugs, common to kids like him with a compromised immune system and decreased lung and respiratory function.psuedomonas aeruginosahaemophilus influenza (not type b)

Almost...
(from my journal)Josh was peaceful yesterday afternoon; he was quiet, looked comfy, was a nice colour and was asleep for hours. After chest physio at around 7pm, that all changed! The next 4 or 5 hours were very difficult...Josh's pulse escalated to the low 200's, his face and chest were red, and his breathing was rapid and he looked like he was working really hard to take a breath. He sweat continually, and was very restless. Because Josh's secretions have been thick, it was thought that perhaps plugs of mucus were "trapped".More blood was taken, m

...
The doctors are quite certain Joey has aspiration pneumonia but this is still to be confirmed. Whenever samples of blood or mucus or whatever is taken, tests are done and things grown from them to see what the infection actually is, and nothing obvious has come back from Joshys samples yet.Last night, I could not believe the gunk coming up from Josh's nose and throat! Overnight, the nurse shouldve just pulled up a chair beside Joshy's bed, because she was in about every 1/2 hour suctioning him. Thankfully, while his temperature is still going up and down, his secretions have thinned out and are looking