Nursing a chore...
Every Monday since I got the new button PEG i have to get up early to see the nurse that comes and changes the water in the balloon in the PEG which has to be done due to the saline water evaporating. The nurse is teaching my mum how to do the saline water so that she can do it and the nurses dont have to come so often which i will be glad because every time they come round they make me think i'm this ill person which I'm not where my mum and the nurse get ov bags of medical stuff that mum keeps. Things like the water syringes and the creams and the tubes for my

My Pro/Cons and rules for the cochlear implant...
ProsYou are still deaf without the external part on so you are still part of the deaf world but you just have the beauty of both hearing and deaf worlds.I can listen to music I can hear my family and friend's voices and still lipreadI can hear the TV without looking at the screen (sometimes without subtitles!)I can hear a person without looking at themI can hear birdsong, rain and all kinds of sounds I have good speech I have had my cochlear implant for 15 ye

Gloomy days...
The nights are drawing in now an getting dark early, its sooo gloomy, it makes me feel down! But I am much looking forward to seeing and hearing the fireworks and christmas is soon too. I have been keeping myself busy doing tapestry and wasgijs (look it up if you arent aware of them) I have made a group on Facebook for mitochondrial people to join but so far no one has joined... i feel a bit lonley regarding the ocndition because I dont have anyone to talk about it with apart from the docs who dont have it but research it Id like to see how other pe

knitted character...
Halloween is now over, I look forward to Bonfire Night and hearing all those bangs, whistles and booms of the fireworks! The nurse is coming over tomorrow to change the water in the balloon of my PEG. This is the balloon that keeps it in my tummy! I get this changed once a week, it can be 2 weeks but the nurses in our town say 1 week because the water in the balloon can evaporate.II'm still working on wasgij's and tapestries alike as well as drooling over Harry Hill's TV burp's knitted character! hehe hes well cute! :)

Update on the new PEG...
I have come alone well with the new PEG (picture in the last blog) although I still haven't got acustomed to using the tube that you connect to the PEG to flush water through yet. It's not so easy when you can't bend your neck down enough to see your tummy! So Mum has been helping with that til I get used to it! It is rather strange not having the tube though, I still act as though I have it like I expect it to be there and stuff it in my trousers or up my top so its out the way of whatever I'm doing and its not there anymore. Almost like a ghost tube! hehe