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Living with Endometriosis

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Blog Name: Living with Endometriosis
Url: http://www.livingwithendometriosis.org/
Language: English
Topics: endometriosis, information, links
Description:
Popularity: 3 Followers

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Examining online health records-keeping
This morning I read a three-day old story on NPR, entitled “Patients Turn To Online Community For Help Healing“. In that segment, three websites were plugged: Microsoft’s My Health Info, Google Health, and Patients Like Me. I decided to check these sites out. I was thwarted immediately upon reaching Microsoft’s My Health Info page, because it wanted me to install Microsoft software called Silverlight (because they hate Adobe Flash for some reason). Nope, sorry, I won’t do it right now, thanks anyway. Next, I checked out Google Health, and si
Online support groups for endometriosis
Two days ago, I was told about another online support group out there, so I want to make mention of it - it is called MDJunction. It stands for “Making A Difference” Junction. I joined today. I belong to a number of online support groups for endometriosis, and I check in when I can. I hope to see you there!
Part II: Overpriced poison?
Part II: Overpriced poison? Posted: Nov 2, 2009 03:53 PM Updated: Nov 2, 2009 06:22 PM 28-year-old Rachelle Fenner finds it hard some days to just get out of bed. “Right now, my face is numb, my shoulders are numb, I feel dizzy, I just don’t ever feel good.” “It’s horrible,” says 30-year-old Mary Orseno. “It’s debilitating. I can’t work full-time. I suffer quite a bit. I can’t play with my son the way I used to be able to play with my son.” The
Overpriced Poison?
Many thanks to Melissa Ralston, moderator of the Goddesses of Endometriosis email list, for finding this hair-raising story. Overpriced Poison? Posted: Oct 30, 2009 04:15 PM Updated: Nov 1, 2009 11:56 PM Doctors and a drug company may be getting rich at the expense of patients and taxpayers. Devastating side effects kept secret and ineffective government oversight. It sounds like a movie script, but it’s playing out in reality. Contact 13 Chief Investigator Darcy Spears
Chronic Pain May Cause Similar Disability Linked With Aging at Earlier Ages
This is one of those studies that makes me shake my head and ask WHY the study had to be conducted in the first place. To me, it is common sense that a person with chronic pain has in fact a disability, and is similar in this regard to a person who is two to three decades older who does not suffer with pain. Of COURSE our bodies act older under the stress of chronic pain! Chronic Pain May Cause Similar Disability Linked With Aging at Earlier Ages Laurie Barclay, MD September 29, 2009 — Younger people with pain have disability similar to that of people who are 2 to 3 decades old

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