Add Your Blog | | Signup
LupusRanting · 8M ago

30 things about my invisible illness you may not know – 2011

30 THINGS ABOUT MY INVISIBLE ILLNESS YOU MAY NOT KNOW 1. The illness I live with is:  Systemic Lupus Erythematosis, Sjogren’s syndrome and autoimmune hypothyroidism 2. I was diagnosed with it in the year:  1992 3. But I had symptoms since:  I was 9 years old 4. The biggest adjustment I’ve had to mak
0 Vote Up · Share
LupusRanting · 8M ago

one year later ….

My sister once told me that it takes about two years to settle in to a new living environment, new city, new community, new life.  That would mean I am halfway through the process.    Life is good in Cape.  At the same time, I really do miss many aspects of  my old life in [...]
0 Vote Up · Share
LupusRanting · 1Y ago

A Fine Mess

January was a busy medical month. My rheumatology checkup was on January 31st and I had a laundry list of things to accomplish before I showed up in the exam room.  Went to the ophthalmologist for a visual field test (because I’m on hydrochloroquine a.k.a. Plaquenil AND have Sjogren’s disease and ne
0 Vote Up · Share
LupusRanting · 1Y ago

Goodbye 2010

What will the new year bring us?  Last year was pretty busy.    In no particular order, I 1.  Bought a new car.  Good times. 2.  Lost my job.  Bad times. 3.  Moved to a new city, Cape Girardeau, Missouri.       4.  Started a small (yet modestly successful) business designing and making jewelry. 5. 
0 Vote Up · Share
LupusRanting · 1Y ago

Living In Harmony

Here I am, living the good life as my sister’s housekeeper while waiting for my social security disability checks.  I’ve read a veritable mountain of books this summer.  The house is clean, the laundry is folded, the plants are watered (most of the time) and the stress factor is manageable.  Still l
0 Vote Up · Share
LupusRanting · 1Y ago

Mixed Blessings

My Social Security Disability application was approved.  I’ve been told that only 30% of  first-time requests are granted disability payments.  I’m obviously relieved and grateful to qualify for social security.  My initial reaction to all this news was something like … “Great, I’m approved for disa
0 Vote Up · Share
LupusRanting · 1Y ago

Life in Cape

The moving expedition to Cape Girardeau was crazy.  Note to self … moving on the hottest weekend of the summer is not a good idea.  However, I had no choice.  Armed with the physical and emotional help of friends, family, cold bottled water and the welcoming arms of my sister, I started a new chapte
1 Vote Up · Share
LupusRanting · 1Y ago

Boxes, Bins and Flowers

One week from today I’ll be living in another city.  I’m up to the task of moving and the adventure that comes along with it. This week I had a semi-surprise goodbye party hosted by The Ten-Thirty Singers, a church music group I’ve been singing with for over 25 years.  Today I enjoyed a goodbye [...
0 Vote Up · Share
LupusRanting · 1Y ago

Trust The Process

There’s nothing like a enormous, old-fashioned calamity to get my creative mojo in maximum overdrive. Last month I experienced a big one.  I lost my job of 18 years.  Holy crap!  Don’t ask me about the details.  Trust me, you don’t want to know. I took the news on the chin, packed up my office, [...
1 Vote Up · Share
LupusRanting · 2Y ago

Talking Trash

My cell phone went missing Monday evening.  After a couple hours of fussing over “what-the-hell-will-I-do-if-I-can’t-find-my-phone” I decided it would turn up if I didn’t try so hard to look for it.  I stopped looking because I’m so very optimistic about expecting happy endings. That didn’t work. So
0 Vote Up · Share
More Stories