Solve CFS – I AM part of the Puzzle
I am part of the Puzzle… I am puzzled… I am puzzling! I am part of the puzzle: my ME/CFS has some very distinctive characteristics and as researchers work to not only identify physical markers of CFS, but

Here comes Autumn – The colors are changing
It’s been a difficult month physically. When my ANS ME/CFS flares, it’s hard to paint. It’s hard to do anything if the flare is bad – as it has been this past month. I must say, I am slowly improving – but it’s amazing how FAST the crash can hit and take me down, and how long it takes to recover. The crash and the recovery do not match. Sadly, I was unable to even get my painting turned in for the Fall Show of the Southwest Washington Watercolor Society which is currently in progress this week. (I won my first ribbon at their Spring show) As I looked back at my blog, I realized how long it had been since I posted. So today, as the air turns crisp,and t

Nose Dive
You pull back on the controls, the airplane soars upwards. As the nose points upwards, your airspeed slows and before you know it, you’ve entered what is known as a stall. The airplane feels like it floats for a moment and then, it suddenly dives towards the ground. Not only that, it begins to spin and before you know it, the ground is spinning before your eyes. I know this because I took flying lessons from my dad, who was a flight instructor. Part of my lessons included purposely stalling the airplane and learning to pull it out of a spin before you hit the ground. They still scared me to death! There was too much to figure out and do in a very short amount o

30 Things About My Invisible Illness You May Not Know
As a part of promoting “Invisible Illness Awareness Week”, I’m joining many bloggers and posting my personal answers to these 30 questions. I hope it helps you get to know me a little better, and understand the illness I struggle with every single day – whether I’m out and smiling or hiding away at home in my PJ’s! 1. The illness I live with is: Partial Dysautonomia (often called POTS) which is a dysfunction of the Autonomic Nervous System  +   ME/CFS 2. I was diagnosed with it in the year: I went through many diagnosis before we narrowed down to what the real illnesse