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Moments with Jacob · 1d ago

HELLO BIRTHDAY MONTH

Dear Jacob,We're once again deep into your birthday month - without you. You would turn twelve in a a week and a half. Twelve. An unimaginable number. A number that makes me feel the distanc...
Moments with Jacob · 3W ago

WHAT I KNOW

Dear Jacob,We're nearing the end of 2017, and it's time to reflect on the year that is about to end. If I would use one word to describe this year, it is change.It was the first full year wi...
Moments with Jacob · 1M ago

I NEED ME SOME JACOB LOVE

Dear Jacob,Christmas is around the corner. It's exactly a week away. The two last weekends have been busy with Christmas parties, A Christmas Carol, Christmas music, baking and gifting. Our ...
Moments with Jacob · 1M ago

THE SEASON TO BE THANKFUL

Dear Jacob,I am finding myself back at Children’s Hospital on this gorgeous Sunday afternoon. I am sitting outside in the sun in only a sweater. There is a slight breeze in the air, and if y...
Moments with Jacob · 2M ago

SIGNS OF LIFE

Sweet Jacob,It has been a long time, since I wrote you. Life has been busy, and work has taken me around Europe once again. As hectic as those trips typically are, you usually found me somew...
Moments with Jacob · 3M ago

IT HAPPENED IN FRONT OF MY EYES

Dear Jacob,One of my favorite hours of the week is five to six pm on Sunday evenings. Joakim and I are changing into our sweat pants and we go to yin yoga. We lay on our yoga mats and stretc...
Moments with Jacob · 3M ago

CALLING YOUR NAME

Sweet Jacob,Everything got so silent after you passed away. Our house was full of sounds when you were in it. You surrounded yourself with people, the noise of the oxygen tank, the beeping o...
Moments with Jacob · 4M ago

MITO DOES NOT DEFINE ME

Sweet Jacob,Your long standing friend and nurse Gemma wrote this in light of Mitochondrial Awareness Week. I was thinking you would enjoy it as much as I did.                 It was in 2010...
Moments with Jacob · 4M ago

CHARLIE GARD'S ANGELS

This is not a political post. This is not a post to take sides. This is not a post about right or wrong.This is a post about compassion and heart for the hardest decision a caregiver has to ...
Moments with Jacob · 4M ago

SEIZURES DOWN MEMORY LANE

Dear Jacob,Sometimes I let myself feel a seizure. I let myself truly feel the pain of your seizures. It is something that is ingrained in me. We endured so many together, way too many for su...