Being complacent
An easy trap to fall in and we all do it. When our children have high levels of support and thrive staff can become complacent (and of course funding issues can play a part) support is reduced and then people wonder why they are not coping so well. Crystal Jigsaw’s daughter is doing well with support as is my 4 year old nephew with his early intervention; they are threatening to reduce both their hours.Even as parents we do it. C recently gave me a sharp reminder of this. I’ve been taking him on the London Eye for a while now

Challenging Behaviour
For me what has been the toughest - C’s Autism or his severe learning disability? Neither it’s his challenging behaviour that has shaped both our lives.What struck me very early on in Cs life was the injustice/stigma he has had to face on so many levels because of his behaviour that has challenged and people don’t see that he is a person first doing the best he can.I found this recently that I had written describing C’s early years. By C proofing the house, early specialist inter

Celebrating 21 years!
I want to bounce into C’s room singing ‘happy birthday’ giving him a big hug and showering him with kisses and presents. But I know what would happen if I did. And it is not about me.So I walk into C’s room, he spies me with his peripheral vision. And then he looks at me, head tilted upside down, fingers pressed into the corner of his eyes. C hums loudly to drown out anything I might say. So I whisper in short sentences not directed at him but to the birthday pr