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Painfully Optomistic · 2d ago

Why do I Advocate!

Well last weekend we had CRPS Awareness Day and it was a huge success! It was a great way to kick off #Nervember. In case you didn’t realize November is CRPS Awareness month and we do everyt...
Painfully Optomistic · 3W ago

Growing the CRPS Community

Today’s been one of those days where you try with everything you have to get things done but it just doesn’t work out! I got three quarters of the way through writing today’s post when my co...
Painfully Optomistic · 1M ago

What Direction Are You Headed?

Hi everyone! Yes I’m still here although you’d never know it with how frequently I’ve been writing! I’ve been trying to get to posting but things are crazy right now and I’m trying to stretc...
Painfully Optomistic · 2M ago

How Do You Navigate Rare Disease?

Today’s been one of those days that finds me moving just a little bit slower, and feeling just a bit more pain than normal. Par for the course in a life that I’ve come to know and accept. Ev...
Painfully Optomistic · 5M ago

Where’s Your Frame of Mind?

Things have been a blur the past few weeks because its been so busy! The month of June is one of those months where you both love it and hate it! With the school year coming to an end we hav...
Painfully Optomistic · 6M ago

Together We Thrive!

Well after an exhausting weekend in Chicago at the HealtheVoices17 conference I came back with renewed vision and refreshed ready to get back into the trenches of advocacy! Did I ever leave?...
Painfully Optomistic · 7M ago

Back to Basics!

Today has been one of those days where your body reminds you that your still sick! So sometimes you just have to know when to give up and let your body rest. The last few weeks have been mor...
Painfully Optomistic · 9M ago

A Spoonie Isn’t A Kitchen Utensil!

Today’s challenge will be to try and put together two articles I need to write combined with a very busy family schedule for today. It’s going to take every available spoon to get through th...
Painfully Optomistic · 9M ago

You Hold The Power To Create Change

Happy New Year everyone! The very fact that your reading this means that not only “you” but “I” managed to get through the holidays! Yes its a little past New Years but everything in my worl...
Painfully Optomistic · 11M ago

“The Crisis”

  Last night was one of those typical nights where you toss and turn trying not to lose your mind! With pain levels spiking because of a flare up there wasn’t a whole lot to do but do what I...