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A blog all about Congenital Heart Defects.
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Perfect Broken Hearts

English - Chd, Heart Defects, Tetralogy Of Fallot
http://perfectbrokenhearts.wordpress.com
Perfect Broken Hearts · 1Y ago

NEW SITE

We are in the middle of some changes and our site is moving to a new address.  Please follow us and visit us at: www.abbysperfectbrokenheart.net Thank you!!!!  You get the same site at the new address.  We hope you’ll move with us and change your links!!!
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Perfect Broken Hearts · 2Y ago

A Quiet Enemy to Recovery–Depression

Daryl Tomlin made a startling statement in an article published December 23, 2008 called “Depression After Open Heart Surgery.” He explained that “The greatest injustice done anyone facing open heart surgery is the lack of information and preparation for the depression that may follow.”  Well, sure,
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Perfect Broken Hearts · 2Y ago

The Others

Abby’s Tetralogy of Fallot can best be described as life altering.  From the moment we found out she had a congenital heart defect, our lives were forever altered.  Nothing would ever be the same for us again.  I would never look at anything in quite the same way–our lives were changed.  By the time
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Perfect Broken Hearts · 2Y ago

Pre-Surgery Jitters

“We cannot change our memories, but we can change the meaning and the power they have over us.” –David Seamands Yesterday Abby and I visited a place we are so very familiar with–Primary Children’s Medical Center.  We walked to these elevators on the south end of the hospital.  They look so bright an
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Perfect Broken Hearts · 2Y ago

I Never Knew I Could Feel This Way

We’ve lived with you for ten years now, an uninvited and unwelcome guest in our family.  We had no choice really–You forced yourself upon us when our beautiful baby girl was born with you altering her perfect heart–breaking it in a sense.  Although you aren’t a guest we would wish to have, I have le
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Perfect Broken Hearts · 2Y ago

A Study on the Stress of CHD Families….or You are Not Alone Part II

If you missed the first part of this short series on the emotional toll of having a child with CHD, you can read it here. Where Parent’s May Look for Relief This interesting article goes on to state that the early days of learning of the diagnosis are often very stressful on the families, especially
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Perfect Broken Hearts · 2Y ago

Hands That Lift

I just returned from a luncheon.  It was a luncheon specially for heart moms.  It was put on by Intermountain Healing Hearts (IHH).  The emotions of the afternoon are still swirling around, filling my heart and head with thoughts and feelings I haven’t felt in a long time.  I had never attended an e
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Perfect Broken Hearts · 2Y ago

Lessons From a Dying Baby

Alarms on the life support machines went off constantly in the ICU.  The electronic screaming signaled wires were disconnected, monitors weren’t working, medicine and saline bags were low, or that there was some other problem that needed attention.  When the alarm went off two beds down from my daug
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Perfect Broken Hearts · 2Y ago

A Study on the Stress of CHD Families….or You are Not Alone

I happened upon a fascinating article in the Journal of Clinical Nursing.  The article was written by Shu-Fan Lan, Pei-Fan Mu, and Kai-Sheng Hsieh.  They are MD’s or RN’s that work in the Pediatric Cardiology field.  They conducted a study in 2003 and their results of the study was printed in the jo
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Perfect Broken Hearts · 2Y ago

Things I Wish I Had Known

The world of Congenital Heart Defects is a roller coaster of ups and downs and twists and turns.  Being a parent is hard enough.  Being a parent to a child with special needs and a special heart is like learning astrophysics.  The diagnosis, the fear, the hospitalizations, the surgeries…all of it is
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