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Silvia's Kingdom · 1W ago

Nicky’s Life Part 55

August 1997 – Nicky here is 8.5 months old and with my help he can stand up. At this point his feet were not too bad so he could put some weight on it. Plus, he was not that heavy! This is key and one of the reasons why nowadays it’s painful for him ...
Silvia's Kingdom · 1W ago

Things Don’t Get Easier

From my book “Butterfly Child“: “For a long time I told myself that things would get easier. It was going to be easier once he sat up, or when he was out of diapers, or when he turned 10, bu...
Silvia's Kingdom · 2W ago

Blog Quotes

As mothers (and fathers!) we have children for many reasons, none of which include seeing our babies in pain for decades nor burying them. The death of a baby is a scarring event, make no mi...
Silvia's Kingdom · 3W ago

Ancestral Discoveries

Everyone in my family knows how obsessed I am about genealogy. Completely obsessed! So it should come as no surprise that one of my favorite TV shows is “Who do you think you are“, who just ...
Silvia's Kingdom · 1M ago

We are the Experts

“This message is so simple, yet it gets forgotten. The people living with the condition are the experts.” I was reading an interview with Michael J. Fox on a magazine and when I read that li...
Silvia's Kingdom · 1M ago

Nicky’s Life Part 54

July 2013 – Nicky, 16.5 years old, on the deck of our cruise ship as it was approaching Da...
Silvia's Kingdom · 1M ago

NO. Not me.

Yesterday morning I had a Doctor appointment and as I was sitting in the waiting area I struck up a conversation with an older gentleman looking lonely. I normally don’t struck up conversati...
Silvia's Kingdom · 2M ago

Blog Quotes

Women are a swirl of emotions as it is and my husband often tells me how on earth we live longer knowing how conflicted we are inside all the time. We are. We are emotional bags and this sor...
Silvia's Kingdom · 2M ago

In the Business of Caring?

I grew up in Italy, so this whole thing about needing “Medical Insurance” is still a bit baffling to me, even though I’ve lived here 2/3 of my life. The more I learn about Health Care in Italy the more I like it. I can’t help but compare what Insuran...
Silvia's Kingdom · 2M ago

Quote on Being Supportive

We are all ill equipped to judge situations we know nothing about. What we can do is be supportive. Listening is the most important thing I tell everyone to do. Offer to help, acknowledge, r...