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Silvia's Kingdom · 1d ago

Blog Quotes

Parenting a child with a life-threatening condition teaches you that life is precious. Life needs to be lived one day at a time. If I learned to smile despite the yearning to cry, it’s becau...
Silvia's Kingdom · 2d ago

10 Truths about being an EB Parent

We hurt to depths that boggle the mind, but we know joy that others will never understand....
Silvia's Kingdom · 1W ago

What I’m Into {April 2018 Edition}

What I am watching I was looking for something to binge on Netflix last month and after wa...
Silvia's Kingdom · 1W ago

While a Condition May Be Rare, Hope Should Never Be

Having hope sometimes is a gigantic challenge. A challenge so unsourmantable that it leaves you in tears and gives you sleepless nights. You cry. You scream. You fall asleep in tears. But th...
Silvia's Kingdom · 2W ago

Bolognese Sauce

Because I am Italian, I’m always asked to give people recipes to make this and that. The t...
Silvia's Kingdom · 2W ago

Nicky’s Life Part 63

September 5, 2004 Connor’s first birthday was really fun for Nicky. He laughed and laughed...
Silvia's Kingdom · 3W ago

I Am Not Your Punching Bag

Wayne Dyer once said: “How people treat you is their karma; how you react is yours.” I wrote in the book Butterfly Child about me being the proverbial “punching bag” for the EB community whe...
Silvia's Kingdom · 3W ago

Blog Quotes

Sometimes, when I sit down and think about it, I forget that the kind of stuff we deal with on a daily basis isn’t normal for most people. I forget, because after 20 years, they are normal f...
Silvia's Kingdom · 4W ago

“At Least” is Never Supportive… Here’s Why.

A couple of years ago, in the name of being “supportive” in regards to Nicky (or so he claimed), someone told me “At least he’s not dead”. Apparently this individual had lost two cousins to some condition he did not identify and that was the reason f...
Silvia's Kingdom · 4W ago

What I’m Into {March 2018 Edition}

What I am watching Just before I left for my trip to Stanford for Nicky’s surgery I finished watching the 2nd and, may I say, glorious, season of Victoria. Because I was enthralled by the Olympics and busy watching Downton Abbey every spare moment, I...