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Silvia's Kingdom · 14h ago

Mental Struggles

Every three months I have an appointment with my psychiatrist and I strangely look forward to it. He is not a therapist per se, we do talk about my mental struggles, but I do not spend an ho...
Silvia's Kingdom · 4d ago

Nicky Life Part 56

August 1997 – Nicky and I on our way to our anniversary dinner. ~ Excerpt from the Book “B...
Silvia's Kingdom · 2W ago

I care too much, and it’s OK

“I care too much, and it’s OK. I will not let anyone tell me I am wrong to love, to have empathy or compassion. Period.” That is what I posted on Facebook this morning with this image on the...
Silvia's Kingdom · 3W ago

We Judge & It’s Wrong. It’s Just Wrong.

I was reading an excerpt of the book by Taraji P. Henson (Around the Way Girl: A Memoir) about her life as a single mom and it hit me hard. Harder than I imagined. I read and re-read the few sentences and I felt as if I wrote them myself. Needless to...
Silvia's Kingdom · 2M ago

Blog Quotes

Just like all EB patients are different, so are the parents. All I ask is a little respect. I’ve taken care of Nicky’s every need since he was born. Please allow me the benefit of the doubt ...
Silvia's Kingdom · 2M ago

Caring Matters

The other day I came across a post about “9 things Italians living in the US will miss“, and while I concurred with everything posted, the one that spoke to me most was the one about family living close by. Oh, how I miss that! But it goes further th...
Silvia's Kingdom · 3M ago

Nicky’s in Charge

The other night I was changing the bandages of Nicky’s lower back and to my dismay, in the...
Silvia's Kingdom · 4M ago

Nicky’s Life Part 55

August 1997 – Nicky here is 8.5 months old and with my help he can stand up. At this point his feet were not too bad so he could put some weight on it. Plus, he was not that heavy! This is key and one of the reasons why nowadays it’s painful for him ...
Silvia's Kingdom · 4M ago

Things Don’t Get Easier

From my book “Butterfly Child“: “For a long time I told myself that things would get easier. It was going to be easier once he sat up, or when he was out of diapers, or when he turned 10, bu...
Silvia's Kingdom · 4M ago

Blog Quotes

As mothers (and fathers!) we have children for many reasons, none of which include seeing our babies in pain for decades nor burying them. The death of a baby is a scarring event, make no mi...