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Was This in the Plan? · 6d ago

Always on a Friday evening.....

I had a dream the other night, it's one I have quite a lot .  The one where I am on my own at home, doing Daisy's IVs late at night and I go to the drawer to get out some more syringes and t...
Was This in the Plan? · 3W ago

Snakes and Ladders

I haven't updated for ages, once again the poor blog has been neglected.  My life has been taken up with lots of writing projects, some freelance commissions as I try to earn some money and ...
Was This in the Plan? · 1M ago

Be careful what you wish for

Christmas.  For Daisy this was the most important time of the year (closely followed by her birthday, and then everyone else's birthdays). The build up started in the summer.  With the deman...
Was This in the Plan? · 1M ago

Wear Jeans, Change Lives

Daisy was born with a completely sporadic gene mutation which caused her to have the rare disease, Costello Syndrome.  She was rare, especially as it was likely that she had some secondary, ...
Was This in the Plan? · 2M ago

An anniversary gift to Andy

The best piece of advice I have ever been given was by a colleague when I was working at Hewlett Packard.  I really wanted a global role and to spend more time working internationally.  "Dec...
Was This in the Plan? · 2M ago

Long hot summer just passed me by

The long summer holiday.  Obviously I use the word "summer' in the loosest sense of the word as I have resorted to firing up the woodburner and digging out my winter boots on more than one o...
Was This in the Plan? · 3M ago

The decision no parent should ever have to face

Nearly 6 months ago I had to make a decision that no parent should ever have to face.  I had to agree to the hospital turning off my daughter's life support and to let her go.I always knew t...
Was This in the Plan? · 3M ago

These foolish things remind me of you

It catches you unawares, when you least expect it.  Those little things.  I'll be  in a shop and see a something that I know Daisy would like, would have liked, and remember that I'm never g...
Was This in the Plan? · 5M ago

Happy Father's Day (especially to those of us pulling the double shift)

Every year on Father's day I send a message to other mums I know who are single parents, acknowledging that they are pulling the double shift . Last year I also became one of those mums. Las...
Was This in the Plan? · 5M ago

Diagnosing autism - services need to be increased, not reduced.

If you are a regular reader of my blog you probably know that my two boys both have a diagnosis of high functioning autism, sometimes called Asperger Syndrome.  My boys are very different, b...